Healthcare through transition and beyond
Transition in healthcare
There are many changes that take place in healthcare as adulthood approaches. These are likely to include:
- Different people responsible for care. Children’s and adult’s medical services tend to be quite separate. Usually only GP services work with patients across all ages.
- Health teams structured in a different way. The way professionals work together may be very different.
- Less coordination among professionals. There is no equivalent of paediatric services to provide a link between health teams, therapy teams and social care.
- Professionals’ roles may be different in adult services. Titles may change, or the same title may carry different responsibilities. Sometimes there may be no equivalent adult service.
- Doctor-patient relationship changes. Without guardianship or power of attorney, parents have no right to be involved in decisions around health and welfare needs. Medical staff can’t break a patient’s confidentiality to share details of treatment or medication. This applies even in emergency situations.
- Support services, such as respite, may be increasingly hard to get.
If someone is likely to have ongoing healthcare needs, it’s really important for these to be part of the transition plan so the right adult service is in place when the children’s service comes to an end.
The school, or whoever is coordinating the transition planning process, should make sure all appropriate healthcare professionals are invited to take part and their input included. You can ask for particular services or therapies to be represented. However it can be difficult to coordinate meetings so that everyone can attend.
These can be hugely helpful as part of planning, and to share among professionals to make sure everyone has access to essential information about the young person and their needs.
Passports can include medical information, how the young person communicates, any wishes they have been able to express, and anything else that helps someone understand and support them more effectively.
They can be written by friends and family, or created digitally and shared electronically. You can find more information about creating a digital passport online, or download tips and templates to help decide what to include.
Transition care plans
These new plans are being introduced across Scotland to help young people receiving support from CAMHS to transfer to adult mental health services.
The age when people leave CAMHS varies depending on where you live. Sometimes it’s 16, sometimes 18 or over.
The transition care plan or TCP is a chance to let everyone involved in someone’s care know their views, opinions and concerns early enough for a smoother transfer into adult services.
Anxiety and mental health
Anxiety, depression and related conditions are common in young people with disabilities, and it can be difficult to find effective treatment.
Your GP should be able to discuss medication or make a referral to mental health services, but they will need your young person’s permission to include you in their discussions unless you have guardianship or power of attorney for health and welfare.
Some young people find talking therapies such as cognitive behavioural therapy (CBT) beneficial. Others find it totally unhelpful, or that the length of time it’s offered for is far too short.
There are private counsellors and psychotherapists across Scotland, some of whom are experienced in working with people with disabilities of various kinds. You can search the Counselling Directory here to find a practitioner near you. However being listed doesn’t necessarily mean someone has the right skills or experience, so you need to use your own judgement or ask for recommendations to choose the best person for you.
Preparing for change
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Parent and vlogger Jenny Trott shares advice and tips on preparing for adult healthcare
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